This is the story of our amazing daughter and her life with Cystic Fibrosis.
Tuesday, June 8, 2010
Upcoming Bronch #3
Olivia's next bronchoscopy will be Thursday June 24 @ 11 am. This time it will be done as outpatient (woohoo!!) and they are going to wait (4 or 5 days after the bronch) and see what/if anything cultures. If the mucous does culture any mean nasties, then we will go back and have the PICC line placed so she can do 2 weeks of IV antibiotics at home. She hasn't cultured anything from throat swabs in the last year so there's a slight possibilty she won't need antibiotics so keep your fingers crossed!
Thursday, June 3, 2010
Clinic Update - June
Olivia had Clinic yesterday and it was a good one! This will be a short post because there is not anything to report. No news is good news.
- Her O2 saturation was 100% again.
- She weighs 27.5 pounds and is 34.5 inches tall. This puts her BMI up to 39%. Just a little bit more to go. I'm looking forward to it getting a little higher so we can get back to clinic every 3 months.
- We had no medication changes at all.
- The doctor listened to her and looked her over then looked at me and said "Well, she looks great. I really have nothing to say. Do you have any questions for me?" (I didn't)
- We are in the process of scheduling her bronchoscopy (third one) in the next few weeks. We will go home for a few days and see if/what the mucous cultures and then place the PICC if needed. Normally, we do the bronch and the follwing day she gets put under again for her PICC. Since, she hasn't cultured anything in the last year, they feel it would be okay to try this way.
Picture Day~
I'm sorry that I've been such a tremendous blog slacker!! I just seem to be having a hard time finding the time to get on a computer.
Anyway, Olivia had school pictures taken a few weeks ago and we got them today!!! So cute!!
Anyway, Olivia had school pictures taken a few weeks ago and we got them today!!! So cute!!
Lately, it has been TOTALLY freaking me out how fast she is growing up!
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