We had clinic today which we had requested because Olivia's cough is so bad. Here are her numbers from the last two clinics:
99% o2 sat
27 % BMI
1.40 liters FEV1
98% o2 sat
1.42 liters FEV1
Her lung function was down a tiny bit, but she's had a really bad cough so we're really happy it was barely down. She has been put on 2 weeks of antibiotics for her cough, so hopefully that will eradicate the issue. Her respiratory therapist also measured her and ordered her a new vest. She chose a purple one this time.
Her weight went up 1.8 pounds so her BMI went from 18% to 27%! I'm so happy with this increase especially since she started back to school and has been dancing a minimum of 4 hours a week. We just need to keep up the good work!
They came in and asked if we are interested in being part of a clinical trial for Orkambi. It's being tested for people with a single copy of delta f508. We will definitely be giving consent and then hope she gets chosen.
Hannah loves her big sister soooo much!