Wednesday, July 1, 2015

July CF Clinic

Olivia had her quarterly CF Clinic today. It was not bad but it was tiring as it always is. Here are her numbers from the last 2 clinics. 

48.9 lbs
49.2 inches
98% o2 sat
18% BMI
1.42 FEV1

47.9 lbs
47 7/8 inches
98% o2 sat
31% BMI
1.34 FEV1

So as you can see her lung function is good but her weight is an Issue AGAIN. So they talked to her about it for a little and talked about eating better and what foods she likes or would give a try. They told her that if this trend continued she would need a g-tube. I've told her that before but I think she thought I was using it as a threat so to have them say it to her freaked her out. 

Normally I post a percentile for her FEV1, but it was explained to me today that her liter number is a more important and accurate thing to watch. So from now on I will be posting those numbers instead.      Definition of FEV1: Forced Expiratory Volume in the first second. The volume of air that can be forced out in one second after taking a deep breath, an important measure of pulmonary function.

We will find out the results from her sputum culture next week. We've been clear for a while now so let's hope the streak continues!

Today was her pulmonologist's last time to see Olivia (moving to Alabama) so Olivia made sure to have the doctor check out her stuffed horse. The horse, Jesse, strained his leg doing a jump. Dr. Lowell said it's healing nicely and should be fine by tomorrow.