Wednesday, June 23, 2010

America's Got Talent video

Tonight on America's Got Talent, two sisters with CF were featured. This video is inspiring, but I warn you that I did cry for pretty much the entire video.

Monday, June 21, 2010

Genius Child!!

Look what my kid can do!!

Ground Control to Major Toot

Olivia was working her new sunglasses while enjoying some Goldfish
crackers this morning.

Sunday, June 20, 2010

To My Partner in Crime

Happy Father's Day to the best father I know!!
This is my favorite picture (to date) of Chris and Olivia.
This is probably my 2nd favorite.
Running around the backyard

Look mommy...a bug!!!
Hey mommy, can I have a Popsicle?  It's hot!

At the end of the day I didn't want to be left out, but it was too hot for me to be hanging around outside!
Cheesing with our sunglasses
I don't really know what she's doing...Do I ever though?

Cut to 30 minutes later...

Tuesday, June 8, 2010

Upcoming Bronch #3

Olivia's next bronchoscopy will be Thursday June 24 @ 11 am. This time it will be done as outpatient (woohoo!!) and they are going to wait (4 or 5 days after the bronch) and see what/if anything cultures. If the mucous does culture any mean nasties, then we will go back and have the PICC line placed so she can do 2 weeks of IV antibiotics at home. She hasn't cultured anything from throat swabs in the last year so there's a slight possibilty she won't need antibiotics so keep your fingers crossed!

Thursday, June 3, 2010

Clinic Update - June

Olivia had Clinic yesterday and it was a good one!  This will be a short post because there is not anything to report.  No news is good news.
  • Her O2 saturation was 100% again. 
  • She weighs 27.5 pounds and is 34.5 inches tall. This puts her BMI up to 39%.  Just a little bit more to go.  I'm looking forward to it getting a little higher so we can get back to clinic every 3 months.
  • We had no medication changes at all.
  • The doctor listened to her and looked her over then looked at me and said "Well, she looks great.  I really have nothing to say.  Do you have any questions for me?"  (I didn't)
  • We are in the process of scheduling her bronchoscopy (third one) in the next few weeks.  We will go home for a few days and see if/what the mucous cultures and then place the PICC if needed.  Normally, we do the bronch and the follwing day she gets put under again for her PICC.  Since, she hasn't cultured anything in the last year, they feel it would be okay to try this way.

Picture Day~

I'm sorry that I've been such a tremendous blog slacker!!  I just seem to be having a hard time finding the time to get on a computer.

Anyway, Olivia had school pictures taken a few weeks ago and we got them today!!!  So cute!!

Lately, it has been TOTALLY freaking me out how fast she is growing up!