Sunday, March 29, 2009

How cool is this??

The Littlest Heroes Project now has Olivia on it...on the front page!!!  If you click here you can read about all of the the children that have been submitted (Olivia is the third one down).  

If you haven't looked into yet, I do highly recommend it!!  It was a wonderful experience and, even though Olivia has her own blog, it still makes me incredibly happy to see her story somewhere else on the internet!

Thursday, March 26, 2009

Monday, March 23, 2009

Nothing major to report from BronchWorld.

Olivia grew E. Coli from the sample taken during her bronch and nothing else. It's possible that it was a contaminant from her throat or it truly is growing in her lungs. Whatever the case, her antibiotics will kill it. They put her back on Prevacid because her bloodwork shows that she's refluxing a bit.

Update and Pictures

We all came home from the hospital on Saturday night and I didn't feel like getting on the computer until today. Olivia is doing well and happy to be home! She still has a slight productive cough. While in the hospital, she got to use the vest for the first time and she seemed to really enjoy it. We have got to get one of those!! It seems like a much better way of getting her CPT's in (versus the percussor cups). She is on 3 doses of Cefepime (or Maxipime if you prefer) per day and one dose of Tobramycin Sulfate all via her PICC line. We are feeling much more comfortable with the line this time and hopefully it won't sass us like it did before. I took some of her socks that she had outgrown, cut the foot portion off so that I could slide her hand through the hole and cover her PICC. She really want to picks at her PICC.

I hope you enjoy the pictures!

I love Versed (aka Happy Juice).

Friday, March 20, 2009

Almost done

Olivia had her bronchoscopy yesterday and her PICC line placed today. Everything went fine with both procedures. Her lungs coated with a thin rope-y layer of mucus. We will know the results of the cultures in a few days. We are happy she4 done and even happier that we get to go home tomorrow!

Wednesday, March 18, 2009

More LHP Photos

Compliments of the lovely and talented Angela Herzog...

Clinic Info

Clinic went exactly how I knew it would. Olivia is coughing and producing more mucus than she should or they would like. She is scheduled to have her bronchoscopy tomorrow at 11:30 with a two stick max for her PICC line. We are hoping they can get it both done in one procedure.

Keep her in your thoughts and prayers!

Tuesday, March 17, 2009

Mucus Question

Sorry if this post grosses anyone out....
Normally when Olivia is able to cough anything up she swallows it before we see it, but last night we saw it. It didn't look like I thought it would, it was (*trying to hold back gag reflex*) thicker and much milkier than I expected. She coughed up stuff again this morning and it was the same. It takes a lot to make me queasy, but phlegm/mucus is the way! Anyway, is this what the mucus always looks like? I thought it would look more like really slimy, clear spit. This was my first time seeing it so I want to make sure it's ok.

A Random Collection of Cuteness

Mmmmm, Eggo mini pancakes!!

I told you that she can fall sleep anytime, anywhere and in any position...

Saturday, March 14, 2009

Olivia waking up Friday morning

She has the entire crib to sleep in and she crams herself into a corner...

She is very slow to wake up...

When she does wake up, she's  always smiling (as you have learned by now).

Good morning Day!

The Bird-Baby

Thursday, March 12, 2009

I love a good commercial..

And this one is great! I love the end!

I have no idea what it has to do with Sprite though...

Wednesday, March 11, 2009

Angela Herzog - Best Photographer EVER!

These are the photos that I have seen from Angela. I think they are so great!!

Tuesday, March 10, 2009

Happy Birthday, Tooters!

Daddy and I want to wish you the Happiest of Happy Birthdays!!   You make us smile everyday and never cease to amaze us with your intelligence, happiness, bravery and love.  Thank you for coming into our lives.  We love you so much!!!  

Our First Family Photo

Birthday Mess!!

Olivia was attempting to feed herself yogurt.  All I can say is, Thank God for suction-based bowls!!!

The prettiest flower I've ever seen...

Birthday Fun!

Here are same photos taken today...

Birthday Breakfast of Champions

I decided that since it is Olivia's birthday, she should have a special breakfast.  She ate about a third of a chocolate-glazed creme-filled Krispy Kreme donut.  Yeah, she liked it...

Fun with Yogurt

Monday, March 9, 2009

Littlest Heroes Project

I don't know if any of you have heard of the Littlest Heroes Project. It's a project that is for children ages Newborn-21 years old that suffer from or have suffered from a life-threatening illness. You have a to fill out a VERY brief application and they get back to you super quick saying if you were accepted or not (I think we got a our e-mail saying we were accepted maybe two hours after I applied). Anyways, they have you look through a list of local professional photographers, you let them know which ones are in your area and they get the photographer in touch with you.

Olivia had her pictures taken on Saturday by Angela Herzog and they are beautiful!

Three Generations

These were taken right before we took my mom to the airport yesterday with the Photo Booth program on our Apple.