This is the story of our amazing daughter and her life with Cystic Fibrosis.
Sunday, March 29, 2009
How cool is this??
The Littlest Heroes Project now has Olivia on it...on the front page!!! If you click here you can read about all of the the children that have been submitted (Olivia is the third one down).
If you haven't looked into yet, I do highly recommend it!! It was a wonderful experience and, even though Olivia has her own blog, it still makes me incredibly happy to see her story somewhere else on the internet!
i'm 31yrs. old and have cf. reading your blog makes me think of the things my mom had to go through when i was born. she was only 20 and we're cuban and cf isnt well known in the hispanic circle. long story short this really brings back memories of my mom telling me stories about me being sick in the hospital. i cant believe how strong kids are to take all the things we go through. the good thing is that your daughter was born at a great time for cf research and new meds and even stem cell research in the future!! hope she's doing great!
4 comments:
That picture is amazing!!! Olivia looks beautiful, and she looks like such a big girl! I'm totally going to check this out!
Very cool!
i'm 31yrs. old and have cf. reading your blog makes me think of the things my mom had to go through when i was born. she was only 20 and we're cuban and cf isnt well known in the hispanic circle. long story short this really brings back memories of my mom telling me stories about me being sick in the hospital. i cant believe how strong kids are to take all the things we go through. the good thing is that your daughter was born at a great time for cf research and new meds and even stem cell research in the future!! hope she's doing great!
Awww, Olivia is famous! :) I love all of the pics of her!
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