Olivia had her quarterly CF Clinic today. It was not bad but it was tiring as it always is. Here are her numbers from the last 2 clinics.
7/1/15
48.9 lbs
49.2 inches
98% o2 sat
18% BMI
1.42 FEV1
1/21/15
47.9 lbs
47 7/8 inches
98% o2 sat
31% BMI
1.34 FEV1
So as you can see her lung function is good but her weight is an Issue AGAIN. So they talked to her about it for a little and talked about eating better and what foods she likes or would give a try. They told her that if this trend continued she would need a g-tube. I've told her that before but I think she thought I was using it as a threat so to have them say it to her freaked her out.
Normally I post a percentile for her FEV1, but it was explained to me today that her liter number is a more important and accurate thing to watch. So from now on I will be posting those numbers instead. Definition of FEV1: Forced Expiratory Volume in the first second. The volume of air that can be forced out in one second after taking a deep breath, an important measure of pulmonary function.
We will find out the results from her sputum culture next week. We've been clear for a while now so let's hope the streak continues!
