What's your name? NUM YUMMY!!

"Did I say I was done? Bring me more food!"

Happy Thanksgiving!!!

Olivia got to eat her first Thanksgiving meal (it was all baby food, but it was still Thanksgiving). Her meal consisted of Gerber turkey with turkey gravy, sweet peas and Betty's cousin's homemade applesauce - which was Olivia's favorite part of the meal, by far!! We have never seen her open her mouth so wide before.

Sweet peas are tasty...

Mmmmmm, turkey is good!!

Yummy, yummy applesauce!!!

And now it's sleepy time...

One Little, Two Little, Three Little Indians...

As you can see, the rash is still there but she's still happy.

New Hope For Cystic Fibrosis - CBS News

This was on CBS on November 18. Don't forget to look into your local Great Strides Walk for 2009 (http://www.cff.org/great_strides/).

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Education is essential!

Ok, I know that this video is sad, but it's life. Don't watch it if you don't want to cry. It is incredibly important that the world gets educated about CF in order to get a cure found!!

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Almost all better.

Olivia finally got rid of her fever yesterday (it was 102.4 until Saturday evening). She seems like she feels better, but her nose is still really stuffed up and she doesn't like us touching it at all. My sister-in-law, Lauren, wonderfully suggested putting chapstick on her nose to cut down on the chapped/raw skin and it seems to be working. Thanks Lauren!! She still has the rash all over and her little face it all broken out with it, but it doesn't seem to hurt her. I just can't wait for her to be all better again...for more than three days!!!

Still sick

The fever that Olivia had Wednesday evening is still hanging around (darn unwanted guests). It's not as high as it was, but it isn't going away. It was 101.4 last night and 101.2 thirty minutes ago. She is still REALLY congested and has a lovely rash from head to toe (the photo doesn't do it justice). Her nose is raw/ chapped from us wipiing it so often. She saw her pediatrician again yesterday, but the fever was gone for the moment so we figured the virus was going away. He put her Omnicef for 10 days (she had a shot of Rocephin the day before). He said it's all just a virus, but we have a feeling we'll be stopping by the ER before the weekend is over.

Sick AGAIN!

Well, Olivia has been running a fever off and on all since 6 pm. We have been giving her Tylenol and Motrin trying to keep it down. It seems like it goes away and then it spikes again. Her snot is back with a vengeance and her lips and hands are little purple. She had a doctor's appointment this morning at 8:30 and they checked her out and said it was a sinus infection. She is getting a shot of Rocephin (the antibiotic she was just on for almost 3 weeks) and they want to see her again tomorrow.


On a side note...HAPPY BIRTHDAY CHRIS/DADDY!!!

Only because I said I would.

Just a quick video of Olivia. She was running a fever (102.8) tonight so I tried to let her sleep it off instead of making her perform. Sorry.

I know, I know... Clinic Update - November

I haven't posted in a while! I'm sorry! I throw myself to the mercy of the court.

Nothing new has really been going on since the hospitalization. She had Clinic last week. No new meds added. Her BMI is now 36% (YAHOO!!). They removed the PICC line while we were there. Chris was keeping her stationary and I was making faces at her and acting goofy trying to keep her happy (she didn't like the tape getting peeled off her arm). I shouldn't have watched when they started to pull the PICC because I started to get a little dizzy and felt myself falling toward the ground. Chris and the nurse caught me and I proceeded to cry while the nurse got me a Sprite I can't explain why I was crying - just some weird reaction. Quite the pillar of strength I turned out to be.

I will take pictures or videos this evening and post them. I know everyone needs their Olivia fix!

Back FROM the hospital

Ok, they did a chest x-ray and found no kinks in her line. Her doctor didn't want to remove the line until its original removal date of next Wednesday. They injected something to hopefully unclog the line and it worked. Everything is working again like it should. Yay!

Back to the Hospital

We weren't able to get a blood return this morning. We called Home Health and had already tried all of their recommendations to no avail. They came out to look at it and now we are taking Olivia back to the hospital.

I will post any updates that I get.

We have liftoff!!

No news is good news

I thought I'd post a reqlly quick update...We've just been hanging out at home, catching up on rest and doing her meds in the morning. Everything has been going smoothly since arriving back at the house. Olivia will be hanging out with Nana/Grandma/Whatever-she-decides-to-be-called this week since she can't go to daycare while she has the PICC. I will update with pictures or videos later (take by my mom).