This is the story of our amazing daughter and her life with Cystic Fibrosis.
Thursday, February 17, 2011
Daddy Daughter Ballet Night
Starring: Chris and Olivia Neal
with Guest Stars: Mark and Piper Belle Webb
Olivia is taking Piper's picture with Courtney's phone. Not me, the other Courtney (Piper's mommy).
She doesn't want to wear her ballet shoes.
Point and Flex.
Tutu Time
Piper is putting a tutu on Mark's head.
Piper is amusing herself with silly faces in the mirror.
Chris is totally cracking up at something.
These three videos show what great and loving fathers our daughters are lucky to have!!
Sunday, February 13, 2011
Video from Boomer Esiason Foundation
When we went to the event yesterday, Boomer started it off saying he was going to show us a video that never leaves a dry eye in the room. He was right. It's over 9 minutes long, but WELL worth your time. I pass on the warning...Get a Kleenex.
Saturday, February 12, 2011
CF Family Day
Today, Chris and I had a great time at a CF event. It's the first one we've been to (other than Great Strides) and it was a good one. We had two guest speakers, Boomer Esiason and Jerry Cahill. They are both incredibly inspiring, I cried pretty much the entire time and I wasn't alone.
Here's an interesting fact that we were told:
2011 is the first year that there are more adult CF'ers than children.
Keep up the ass kicking excellent work!
Here I am with (54 year old CF'er) Jerry Cahill.
Here is Boomer with Chris and me.
Here's an interesting fact that we were told:
2011 is the first year that there are more adult CF'ers than children.
Keep up the ass kicking excellent work!
Here I am with (54 year old CF'er) Jerry Cahill.
Here is Boomer with Chris and me.
Friday, February 11, 2011
Things to do while sick...
While you're at home for a few days and can't really go outside due to weather, you must find things to do to stay busy.
Make breakfast (sweet cream biscuits).
Enjoy with breakfast with butter and strawberry jelly.
Eat and watch PLENTY of Dora the Explorer.
Olivia gives breakfast a thumbs up.
Make cookies for daddy (oatmeal chocolate chunk).
Play a game of "Moneky See, Monkey Do".
Work on our impersonations.
Do treatments.
Work on "Scrunchy Monkey Toes"
Get plenty of rest!!
This concludes the lesson.
Tell me a story...
While at the doctor's office on February 1st (because she was sick AGAIN - tis the season), Olivia "read" me a story. I think Oprah will be featuring it.
Thursday, February 10, 2011
Check back tomorrow!
I have a few posts up my sleeves for tomorrow. Be sure to check back for some cuteness.
Thursday, February 3, 2011
Go Steelers!
I actually don't care at all who wins the Super Bowl-I only watch for the commercials. I just like it when public figures do something good with their celebrity.
Wednesday, February 2, 2011
Clinic Update - February
Olivia had Clinic this morning which I was very glad about because she has been sick two times in the last two weeks. Mid January, she caught the basic coughing crud that was going around. She had the snotty nose and wet, productive cough (her pediatrician put her on an antibiotic just to be safe). The cough was present until this last Wednesday. On Friday, Olivia's daycare called to tell us there was a case of RSV in a different room, but the child has a sibling in Livy's class. She was sick over the weekend and Monday, she went to the pediatrician again. He tested her for RSV, flu and strep and she was negative for all three but still clearly sick. Ok, you're up to speed so here's the latest info.
-O2 saturation was 100%.
-Her lungs sound coarse, but pretty clear. I don't know exactly what that means, but the doctor didn't seemed concerned. He said they weren't crackling - these are terms that I've never heard in regards to lungs so if anyone can translate, I would appreciate!
-She has a slight upper respiratory infection and a sinus infection which is causing her eye to get goopy in the corner and red. He prescribed her Bactrim for 2 weeks.
-Her height was 94.6 (37.2 inches) cm and her weight was 13.1 kg (29 lbs). So in the last three months she has grown 1.8 inches and gained NO WEIGHT and you know what that means. Her BMI dropped from 58% to 24%. Since she has been sick twice in the last two weeks and grew a bunch, I'm not stressing over the tremendous BMI drop. I just need to get it back up.
-No medication changes were made.
-Not a bad Clinic, but we've had better.
Well, that's all the info I have. I shall leave you with a hysterical picture Chris took of our string bean while at the hospital today.
-O2 saturation was 100%.
-Her lungs sound coarse, but pretty clear. I don't know exactly what that means, but the doctor didn't seemed concerned. He said they weren't crackling - these are terms that I've never heard in regards to lungs so if anyone can translate, I would appreciate!
-She has a slight upper respiratory infection and a sinus infection which is causing her eye to get goopy in the corner and red. He prescribed her Bactrim for 2 weeks.
-Her height was 94.6 (37.2 inches) cm and her weight was 13.1 kg (29 lbs). So in the last three months she has grown 1.8 inches and gained NO WEIGHT and you know what that means. Her BMI dropped from 58% to 24%. Since she has been sick twice in the last two weeks and grew a bunch, I'm not stressing over the tremendous BMI drop. I just need to get it back up.
-No medication changes were made.
-Not a bad Clinic, but we've had better.
Well, that's all the info I have. I shall leave you with a hysterical picture Chris took of our string bean while at the hospital today.
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